Written by Khady Thiam
Edited by Tasniah Jahan
Albinism is a genetic disorder that disrupts the development of melanin in one’s hair, skin, and eyes. It is something that one is born with, and lasts for a lifetime. Unfortunately, there is no present cure for this condition, but it is not fatal. While there are not many physical limitations, those affected are unable to stay in the sun for extended periods due to their lack of melanin, which can cause severe burns. The worst part of albinism is the emotional and mental impact. Children with albinism suffer a lot of discrimination from society because of their physical uniqueness. In Africa, where this phenomenon is more prevalent, thousands of children get accused of witchcraft every year due to their albinism. Witches are seen as different from the “law-abiding mortals” and because of their allegedly malicious acts, they look and act different from “normal” people. Their apparent maliciousness comes from being associated with evil beings or spirits who they supposedly create certain agreements with in order to gain their powers. They are also seen as the creators of disaster and destruction, and because of this, they are minimized and mistreated.
Due to their different appearance, people with albinism are unfortunately accused of these awful allegations, especially by family members. Because of this, many of these cases are not reported. Women are especially victimized by this discrimination because not only are they the most stigmatized due to their gender but they are also accused of cursing their family when they give birth to children with albinism, or being unfaithful. This can lead to abandonment and neglect.
Fortunately, there are ongoing efforts to address the human rights issues faced by people with albinism. One example is the consultative forum that took place in Tanzania in 2016, from June 17 to June 19. The members of the forum addressed short and long term measures that should and would be taken to protect those who are attacked physically, emotionally, and mentally because of their condition.
There were similar meetings that took place in other parts of Africa such as South Africa and Kenya, where there were discussions on measures to be taken to protect the victims of discrimination and advance the rights of people with albinism.
Take Action: Fight against human rights violations against people with albinism by donating to provide them with education and advocacy.
References:
“Albinism in Africa.” United States Human Rights. 2015
Egbeto, Ista A & Richmond, Jillian M. “What is Albinism?” April 23, 2021.
Russel, Jeffrey B. “Witchcraft in Africa and the World.” 2023